Compliance, concordance, and patient-centered care

Since the appearance of the WHO compliance–adherence report 1,2 we have had confirmed what many patients and health professionals have known for a long time, that many patients simply do not follow health professionals' advice – they vary that advice to suit their needs. Also, health professionals often do not follow evidence-based guidelines when providing treatment and care to patients. We have tended to cope with these phenomena by labeling patients as 'noncompliant', or, worse, and have denied them treatment access in some settings or imposed treatment against their will. Mental health settings provide a stark focused lens on this phenomenon, but it likely pervades many other areas of health care. In a recent attempt to unpack the discourse around concordance, compliance, preference , and adherence, Fraser 3 argued for the term 'concordance', by which the health professional and patient strive for a more equal relationship in deciding goals for treatment and enforced treatment is avoided. He concluded that, 'the bottom line is that it doesn't matter what you call it as long as the patient takes the correct medication at the correct time and at the correct dose' (p. 96). Holding that this is true, he attaches the rider that cognitive and social problems within the patient affect their capacity to achieve this. Yet, I believe that this approach continues to miss some very important and fundamental value shifts that need to occur, if truly patient-centered care is to be achieved by health professionals. It also places the lived experience and social determinants surrounding the patient as second to health professional expertise based purely on 'the science'. It runs the risk of continuing to be understood as compliance to what the health professional says should happen, rather than genuine concordant processes that fully acknowledge the patient's role in decision-making about treatments. We would like to believe that health professional expertise and decisions are always based on rigorous science. We have certainly come a long way in the past 100 years of research and practice and we know much more about causes of disease and their effective treatment. But we still have much to understand about the cycle and path of illness, particularly the unique ways by which it displays itself in each individual and how they respond and make sense of the experience as part of what we all do to strive to make sense of our world. Cancer …